Tomaso Wilkins

Tomaso Wilkins

At 17, my world was full of fishing, golf, and lacrosse. I spent my hours after school playing ...


WARRIOR Story

At 17, my world was full of fishing, golf, and lacrosse. I spent my hours after school playing with friends on the field, fishing with my siblings and enjoying golf on the weekends. Cooking with my mom and taking care of my 3 siblings is a huge priority in our family. You can see me at church on Wednesday nights and jumping in the lake on the summer days. Now…its all changed.

I am now a WARRIOR. I am fighting for my life. I will win, but I need help. On June 18th, 2017 after 4 days of a migraine, I went into urgent care for help. Upon rushing by ambulance to the hospital, the news hit like a ton of bricks. “Internal bleeding, ulcer, low red blood cells” were the words surrounding my every thought. After 36 hours of blood transfusions and prayer, an ulcer was found. As they went in to repair the bleeding ulcer in my stomach, the doctors were concerned with tissue they had never seen before. You can imagine the horror and surprise when two doctors tell you in all their years they have never seen this before. We stood together, scared, but together.

Over the course of the next few days, news after news came. I was scared but had to stay strong. I fought hard to be brave, but the question, “would I die” kept surfacing in my thoughts. Then it happened. Every kids worse nightmare. Watching the expression on my mothers face as they told me what I had. It was an out of body experience that I can not put into words. GIST Tumors are so rare only 1 in a million teenagers get them. As our hearts sank, I stayed focused. My brain went into hyper drive. I was so scared I couldn’t talk, but I am a WARRIOR. My family has called me a WARRIOR since birth so it was quite fitting that we found “The Young and Brave.” God’s blessing.

Okay so I have cancer, its serious and has infected spots on my liver and my lymph nods are abnormal. Okay. I can do this. My mom crumbles inside but stays strong. She supports all four children with a smile on her face. While everyone is melting she keeps that strong Italian spirit and fights hard. Then we get the PET Scan results. The GIST Cancer has spread to cover my entire liver and the lymph nods all around. I still fight.

Taking chemo everyday for 3 years is more daunting that it sounds. Think about it, 3 years every single day, not one day off for 3 years. This will work, I will heal, I will survive this. I will beat this cancer, it does not have me. Heading home after 10 days in the hospital, with my chemo in hand, its called the “Bullet pill,” I face yet another mountain to climb. How will we afford to travel each week for a blood test so far? How will we afford to only eat protein, fruit and vegetables on such a tight budget? How will we do this?

Through the grace of God, we are strengthened. We will battle and fight. God is with me, I will not fail. I need help, we need help. I am scared but not because I have cancer. I am scared because Mom is only able to now work part time because she must manage my health and the diet that goes along with this chemo which is really strict.

At 17, I am not worried about my first date or the upcoming movie night with friends, but rather how we will afford the gas to travel to my blood test every week? We need warriors like you to help. We need help to fund the specialized diet to work with the chemo to heal my body, funds to offset the cost of bills so we can stay in our house and funds to help the medical and travel expenses we are now accruing. We need prayers for my health and the welfare of my family. We need to pray for all human race to stick together in peace in harmony. We need to change the face of cancer.

#lovebeatscancer I have GIST Cancer but GIST cancer will never have me, ever.

Updates
  • Alice Wilkins
    Posted an announcement September 13, 2017 3:30 pm

    Warriors thank you for your prayers and donations. Without your support we would not have been able to bring Tomaso to the specialist in San Diego. After the exams and tests we were given a lot of information to digest.

    Tomaso will have surgery Sept. 26th to remove 85% of his stomach that is affected by the GIST tumor. This surgery would not be possible with out the warrior fund as we would not have been able to afford the rental car, gas and hotel fee’s without you. Thank you so much for your support. We love you all.

    Monday, Tomaso started a new chemo in hopes that it will shrink the tumors else where in his body. Please be praying for little to no side effects and that the chemo will shrink the tumors. We hope on the 26th the dr will be able to determine if the chemo is working by looking at the tumors.

    Tomaso is a fighter, climbing a steep mountain through his perseverance of his faith, the support of the Young and Brave Foundation and his warrior team of prayers and donators. Please spread the word. We need all the prayers and donations we can get.

    Thank you for fighting with us.

  • Alice Wilkins
    Posted an announcement August 30, 2017 1:19 pm

    This week has brought forth a significant amount of information for Tomaso. We found out that Tomaso is SDHA deficient. Sadly this means the chemo isn’t working and he has stopped it. The doctors at Stanford have an aggressive approach for surgery they are ready to do.We will see the specialist in San Diego on the 5th and 6th and hope and pray we can get his take on the surgery. As a pedeatric specialist in GIST, he also knows what to do regarding what if any type of chemo make work.We are remaining positive but we are scared and need prayers. The doctor in San Deigo is expensive to see but as the only specialist on the west coast who deals with this cancer, we have to exhaust every effort to see him.We pray donations still come in to help us pay for the doctor and as well that they can find something to make the cancer stop growing. We are forever in debt to The Young and Brave for all their support and help. They have given Tomaso so much to look forward to. Please spread the word. Each dollar goes so far and the prayers are the only thing keeping us going!

  • Alice Wilkins
    Posted an announcement August 18, 2017 11:51 am

    Dear Warrior Supporters,

    Thank you for your prayers, donations and strength you have given Tomaso. The last few weeks have been busy.

    Tomaso was able to see the doctors at Stanford, praise God. They accepted his CCS. The doctors at Stanford are not Pediatric GIST specialist so they kindly have supported us in finding a pediatric specialist to work with them to help Tomaso. We did find one! He is very far away and it will cost alot of money to travel there but thankfully answered prayers have helped us find him! See below for how awesome this is!

    Today starts quite the month of dates, doctors and appointments

    Yesterday was Tomaso’s first day of his senior year of high school. He was excited in the morning and feeling positive about his support system at school. Please be praying for his school, teachers and Tomaso. He will miss quite alot of school this year with appointments so far away (Stanford is a 5-6 hour drive each way, San Diego is a 9-12 hour drive each way), but he was focused and ready to start. We are excited he was feeling energized and ready to conquer the year.

    Aug. 23- we hope to have the results back from the genetic mutation testing to determine if his cells are positive for SDH deficiency or what mutation he has of GIST.

    Aug. 25- We head to Stanford to meet the Oncologist and the Surgeon to discuss Tomaso’s next steps. Since the chemo is not working, we are hopeful the information from the genetic testing along with their plan may help to determine what type of chemo he needs to go on to help shrink the tumors.

    September 5th is a BIG day. We have been blessed by The Young and Brave Foundation for Tomaso to attend the San Diego Padres game for a special event. This is a HUGE blessing because during this time, we also found out the ONLY pediatric GIST specialist in California is in San Diego. Praise GOD!

    Septebmer 6th- we are hoping and praying the specialist can fit us in to see Tomaso. He called us and asked about him so we are hopeful they will squeeze him in to see him. He is known around the US as the pediatric specialist so we feel honored to see him! He should be able to help us understand the composition of the tumors and how to best get rid of them!

  • Alice Wilkins
    Posted an announcement August 4, 2017 10:45 am

    Prayer warriors we need you. We got the results from the pet scan and we got devastating news regarding the doctors. With your prayers we know God will guide us to the right decision.

    Tomaso’s pet scan showed the GIST has stayed the same. This is definitely a blessing that it has not grown but it does mean that the chemo isn’t working. We are grateful it has prevented it from growing more but if it is not shrinking than we have to change the formula.

    We need prayers. We must wait for the genetic mutation testing to come back (4-6 weeks) before they can know the exact way to attack the cancer cells. It’s scary to wait this long but we do know his current chemo is keeping the tumors from growing.

    We need prayers. We found out this morning the specialist at Stanford is not covered under CCS you can imagine the devastation because right now this means that we will have to pay out of pocket for the visit we had, pay for all the testing that was ordered and we can’t afford any of that. We are praying that the specialist will either choose to become a CCS provider so we can see her or take Tomaso’s case and accept payment from CCS even if she is not a provider.  We also need prayers that the bill coming from this visit can somehow get funded by insurance.

    Friends we need your prayers. Thank you for your kindness in donations and please spread Tomaso’s link around so we can try to reach our goal. We love you all. God Bless.

  • Alice Wilkins
    Posted an announcement August 2, 2017 2:34 pm

    Today was a big day for Tomaso. He had his PET Scan after 5 1/2 weeks on his chemo regimen. One of three things will be determined: 1- the GIST is growing which means the chemo is not working and they will change it, 2- the GIST is the same size or, 3- the GIST is shrinking. 

    Tomaso also saw CCS this morning and we are in an approval process for Tomaso to see the team of 21 specialist at Stanford next week if approved. Please be praying they approve his exams, tests and visits because without approval he can not go. They want to do an in depth CT Scan on his liver to determine how the GIST is effecting his liver.

    The exams costs are outrageous so we just want to thank you so much for your donations as we could not do this without you. Please send the link to family and friends. It’s 100% tax deductible. We are beyond blessed for your support. Please send your prayers and positive thoughts our way. #lovebeatscancer

  • Alice Wilkins
    Posted an announcement July 20, 2017 8:37 am

    Hi Warriors,
    Please keep your prayers coming! This week we have had some blessings and also some curve balls.
    Tomaso gets to advance his diet to soft foods. Who knew pasta and smoothies could make such a big smile!!! We are hopeful he will not experience any effects from advancing his diet.
    We have been referred to Standford to meet with the oncologist to determine what mutation of GIST Tomaso has. This is an uphill battle because each doctor must refer him but both of his current specialist agree he needs to go so this is good. We are hopeful the insurance and other doctors on the team will sign off on this.
    GIST can be mutated, have different strains and has different properties depending on whether it is childhood GIST or adult GIST. We have to figure this out because that will determine the correct formula of chemo to help Tomaso heal. Please be praying for us. It is shocking how significant the bills are, medicine costs is and the 3-6 DR visits a week. The drive is difficult being an hour and a half each way. We never knew how expensive health care really was until this.  With your support we are surviving. Thank you.
    Thank you for all your support. We are hopeful we reach our fundraising goal to help Tomaso and his treatment. #lovebeatscancer

  • Alice Wilkins
    Posted an announcement July 13, 2017 2:06 pm

    Tomaso is adjusting well to being at home. We are grateful that this week during his exams his blood levels were staying consistent. Its a long road to recovery, but with positive affirmations, prayers and warriors along side our family, he will get through this. We are eternally grateful for your prayers, support financially and help with our family. The bills are already coming in and because of you, we will make it! Blessings to you all.

  • Alice Wilkins
    Posted an announcement July 8, 2017 8:51 pm

    Tomaso is home! They have him on a liquid diet only which is really hard on a growing teenager but he is strong. We are hopeful the new medicine will help protect his stomach from the tumor. This will hopefully eliminate any more internally bleeding. Please help us pray for Tomaso’s energy level and that he has no more side effects from the chemo. We will update you as soon as we get the new test results. Blessing to you all for your prayers, donations and support of our family.

  • Alice Wilkins
    Posted an announcement July 4, 2017 6:07 pm

    Its been a really long 12 hours. We are beyond blessed that all of you amazing warriors have donated already. We can’t believe the donations that have come in so far. How amazing that so many people care so much. Thank you. Thank you for believing in Tomaso. Last night we had to rush Tomaso into the hospital. He started internally bleeding again. They went in this morning and found the bleeding and have stopped it. They have added medicine and sadly he is now on broth and liquid only for his diet for the near future. He did crack a joke to his Auntie about drinking his dinner and his spirits are okay. We are hopeful that in the next few days they can determine if what they did today will stop the bleeding. We love you all. Thank you for being warriors along side Tomaso.

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Joshua, Jennifer, Malcolm, McLane
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Carrie Kelly-Pierce
$50
Denise Lawless
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Advance Kids
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  • Alice Wilkins
    Posted an announcement September 13, 2017 3:30 pm

    Warriors thank you for your prayers and donations. Without your support we would not have been able to bring Tomaso to the specialist in San Diego. After the exams and tests we were given a lot of information to digest.

    Tomaso will have surgery Sept. 26th to remove 85% of his stomach that is affected by the GIST tumor. This surgery would not be possible with out the warrior fund as we would not have been able to afford the rental car, gas and hotel fee’s without you. Thank you so much for your support. We love you all.

    Monday, Tomaso started a new chemo in hopes that it will shrink the tumors else where in his body. Please be praying for little to no side effects and that the chemo will shrink the tumors. We hope on the 26th the dr will be able to determine if the chemo is working by looking at the tumors.

    Tomaso is a fighter, climbing a steep mountain through his perseverance of his faith, the support of the Young and Brave Foundation and his warrior team of prayers and donators. Please spread the word. We need all the prayers and donations we can get.

    Thank you for fighting with us.

  • Alice Wilkins
    Posted an announcement August 30, 2017 1:19 pm

    This week has brought forth a significant amount of information for Tomaso. We found out that Tomaso is SDHA deficient. Sadly this means the chemo isn’t working and he has stopped it. The doctors at Stanford have an aggressive approach for surgery they are ready to do.We will see the specialist in San Diego on the 5th and 6th and hope and pray we can get his take on the surgery. As a pedeatric specialist in GIST, he also knows what to do regarding what if any type of chemo make work.We are remaining positive but we are scared and need prayers. The doctor in San Deigo is expensive to see but as the only specialist on the west coast who deals with this cancer, we have to exhaust every effort to see him.We pray donations still come in to help us pay for the doctor and as well that they can find something to make the cancer stop growing. We are forever in debt to The Young and Brave for all their support and help. They have given Tomaso so much to look forward to. Please spread the word. Each dollar goes so far and the prayers are the only thing keeping us going!

  • Alice Wilkins
    Posted an announcement August 18, 2017 11:51 am

    Dear Warrior Supporters,

    Thank you for your prayers, donations and strength you have given Tomaso. The last few weeks have been busy.

    Tomaso was able to see the doctors at Stanford, praise God. They accepted his CCS. The doctors at Stanford are not Pediatric GIST specialist so they kindly have supported us in finding a pediatric specialist to work with them to help Tomaso. We did find one! He is very far away and it will cost alot of money to travel there but thankfully answered prayers have helped us find him! See below for how awesome this is!

    Today starts quite the month of dates, doctors and appointments

    Yesterday was Tomaso’s first day of his senior year of high school. He was excited in the morning and feeling positive about his support system at school. Please be praying for his school, teachers and Tomaso. He will miss quite alot of school this year with appointments so far away (Stanford is a 5-6 hour drive each way, San Diego is a 9-12 hour drive each way), but he was focused and ready to start. We are excited he was feeling energized and ready to conquer the year.

    Aug. 23- we hope to have the results back from the genetic mutation testing to determine if his cells are positive for SDH deficiency or what mutation he has of GIST.

    Aug. 25- We head to Stanford to meet the Oncologist and the Surgeon to discuss Tomaso’s next steps. Since the chemo is not working, we are hopeful the information from the genetic testing along with their plan may help to determine what type of chemo he needs to go on to help shrink the tumors.

    September 5th is a BIG day. We have been blessed by The Young and Brave Foundation for Tomaso to attend the San Diego Padres game for a special event. This is a HUGE blessing because during this time, we also found out the ONLY pediatric GIST specialist in California is in San Diego. Praise GOD!

    Septebmer 6th- we are hoping and praying the specialist can fit us in to see Tomaso. He called us and asked about him so we are hopeful they will squeeze him in to see him. He is known around the US as the pediatric specialist so we feel honored to see him! He should be able to help us understand the composition of the tumors and how to best get rid of them!

  • Alice Wilkins
    Posted an announcement August 4, 2017 10:45 am

    Prayer warriors we need you. We got the results from the pet scan and we got devastating news regarding the doctors. With your prayers we know God will guide us to the right decision.

    Tomaso’s pet scan showed the GIST has stayed the same. This is definitely a blessing that it has not grown but it does mean that the chemo isn’t working. We are grateful it has prevented it from growing more but if it is not shrinking than we have to change the formula.

    We need prayers. We must wait for the genetic mutation testing to come back (4-6 weeks) before they can know the exact way to attack the cancer cells. It’s scary to wait this long but we do know his current chemo is keeping the tumors from growing.

    We need prayers. We found out this morning the specialist at Stanford is not covered under CCS you can imagine the devastation because right now this means that we will have to pay out of pocket for the visit we had, pay for all the testing that was ordered and we can’t afford any of that. We are praying that the specialist will either choose to become a CCS provider so we can see her or take Tomaso’s case and accept payment from CCS even if she is not a provider.  We also need prayers that the bill coming from this visit can somehow get funded by insurance.

    Friends we need your prayers. Thank you for your kindness in donations and please spread Tomaso’s link around so we can try to reach our goal. We love you all. God Bless.

  • Alice Wilkins
    Posted an announcement August 2, 2017 2:34 pm

    Today was a big day for Tomaso. He had his PET Scan after 5 1/2 weeks on his chemo regimen. One of three things will be determined: 1- the GIST is growing which means the chemo is not working and they will change it, 2- the GIST is the same size or, 3- the GIST is shrinking. 

    Tomaso also saw CCS this morning and we are in an approval process for Tomaso to see the team of 21 specialist at Stanford next week if approved. Please be praying they approve his exams, tests and visits because without approval he can not go. They want to do an in depth CT Scan on his liver to determine how the GIST is effecting his liver.

    The exams costs are outrageous so we just want to thank you so much for your donations as we could not do this without you. Please send the link to family and friends. It’s 100% tax deductible. We are beyond blessed for your support. Please send your prayers and positive thoughts our way. #lovebeatscancer

  • Alice Wilkins
    Posted an announcement July 20, 2017 8:37 am

    Hi Warriors,
    Please keep your prayers coming! This week we have had some blessings and also some curve balls.
    Tomaso gets to advance his diet to soft foods. Who knew pasta and smoothies could make such a big smile!!! We are hopeful he will not experience any effects from advancing his diet.
    We have been referred to Standford to meet with the oncologist to determine what mutation of GIST Tomaso has. This is an uphill battle because each doctor must refer him but both of his current specialist agree he needs to go so this is good. We are hopeful the insurance and other doctors on the team will sign off on this.
    GIST can be mutated, have different strains and has different properties depending on whether it is childhood GIST or adult GIST. We have to figure this out because that will determine the correct formula of chemo to help Tomaso heal. Please be praying for us. It is shocking how significant the bills are, medicine costs is and the 3-6 DR visits a week. The drive is difficult being an hour and a half each way. We never knew how expensive health care really was until this.  With your support we are surviving. Thank you.
    Thank you for all your support. We are hopeful we reach our fundraising goal to help Tomaso and his treatment. #lovebeatscancer

  • Alice Wilkins
    Posted an announcement July 13, 2017 2:06 pm

    Tomaso is adjusting well to being at home. We are grateful that this week during his exams his blood levels were staying consistent. Its a long road to recovery, but with positive affirmations, prayers and warriors along side our family, he will get through this. We are eternally grateful for your prayers, support financially and help with our family. The bills are already coming in and because of you, we will make it! Blessings to you all.

  • Alice Wilkins
    Posted an announcement July 8, 2017 8:51 pm

    Tomaso is home! They have him on a liquid diet only which is really hard on a growing teenager but he is strong. We are hopeful the new medicine will help protect his stomach from the tumor. This will hopefully eliminate any more internally bleeding. Please help us pray for Tomaso’s energy level and that he has no more side effects from the chemo. We will update you as soon as we get the new test results. Blessing to you all for your prayers, donations and support of our family.

  • Alice Wilkins
    Posted an announcement July 4, 2017 6:07 pm

    Its been a really long 12 hours. We are beyond blessed that all of you amazing warriors have donated already. We can’t believe the donations that have come in so far. How amazing that so many people care so much. Thank you. Thank you for believing in Tomaso. Last night we had to rush Tomaso into the hospital. He started internally bleeding again. They went in this morning and found the bleeding and have stopped it. They have added medicine and sadly he is now on broth and liquid only for his diet for the near future. He did crack a joke to his Auntie about drinking his dinner and his spirits are okay. We are hopeful that in the next few days they can determine if what they did today will stop the bleeding. We love you all. Thank you for being warriors along side Tomaso.

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Alice Wilkins
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