Gracie Williams

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"On December 1, 2017, my husband and I received the phone call no parent wants to get. We were told that “they found something” on the MRI my five year old daughter, Gracie, had on her brain the night before, and that we needed to rush to the emergency room at OHSU Doernbecher Children’s Hospital.  The neurosurgeon told us that they found a tumor on her brain stem.  She was admitted to the hospital where she underwent surgery to biopsy the tumor that night

The pathology of the biopsy came back the following Thursday, December 7, and she was diagnosed with a brain tumor through and around her brain stem, that is a glioblastoma with molecular features of a high-grade glioma. It is an atypical form of Diffuse Intrinsic Pontine Glioma, DIPG, which is doctor speak for terminal brain cancer.  She was admitted to the hospital again that night, and underwent a second surgery in the morning to reduce the mass. They cannot remove it since it is intrinsic and part of her brain stem at this point.  They were able to remove an estimated 35-40% of the tumor, which the neurosurgeon said was *good* but they could not safely remove any more than that.

After recovering for a month, she begins radiation therapy on Monday, 1/8/18. Radiation will be every weekday for 30-40 sessions.  She will also be taking an oral chemotherapy drug for the next year, or so."

Supporters (5)

  1. Phoebe Iacovides 
    4 weeks ago
  2. David Castro 
    1 month ago
  3. Allison Krist 
    2 months ago
  4. nathaniel curran 
    2 months ago
    2 months ago

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